Skip to main content
You are the owner of this article.
You have permission to edit this article.
Edit
Fortenberry gathers 240 co-sponsors for bill to combat ALS
0 Comments
editor's pick

Fortenberry gathers 240 co-sponsors for bill to combat ALS

  • Updated
  • 0
{{featured_button_text}}

Rep. Jeff Fortenberry has gathered the signatures of 240 House co-sponsors for a bill to speed and expand access to critical and promising therapies for ALS patients while streamlining the drug review process that sometimes stands in their way.

For ALS patients, there is no time to waste. 

It usually takes 2-5 years for ALS to destroy a body, Fortenberry said during a House floor speech.

Joining hands to fight ALS and the ticking clock

ALS patients are currently trapped in "an overly deliberative process that is killing hope" by delaying access to critical therapies and investigational treatments, Fortenberry said, and they could be helped by "a more consistent and streamlined drug review process."

The legislation is designed to be "more responsive to patients suffering right now," the 1st District Republican congressman said. 

"We can act quickly if we want to," Fortenberry said. "We can act quickly if we are determined. We can do this."

Ricketts urges new round of federal COVID-19 assistance

ALS, or amyotrophic lateral sclerosis, which is often referred to as Lou Gehrig's disease, is a fatal nervous system disease.

"There is no cure," Fortenberry said, but there are promising therapies.

Earlier this year, he said, "my wife's little brother" died as a result of ALS at the age of 37, leaving behind his own wife and four small children. 

UNMC expert makes urgent call for mask mandate; Ricketts doesn't budge
Don Walton: Post-Thanksgiving virus alert; but help is on the way
Ricketts says his COVID-19 plan is right for Nebraska despite White House task force assessments
Ricketts says his COVID-19 plan is right for Nebraska despite White House task force assessments

Fortenberry's bill, titled Accelerating Access to Critical Therapies for ALS Act, would establish a Center of Excellence for Neurodegenerative Diseases at the Federal Drug Administration to accelerate development and approval of therapies.

"This is a full-court press," the congressman said. "So many people of good heart have helped us build tremendous bipartisan momentum."

Reach the writer at 402-473-7248 or dwalton@journalstar.com.

On Twitter @LJSdon

0 Comments
0
0
0
0
0

Build your health & fitness knowledge

* I understand and agree that registration on or use of this site constitutes agreement to its user agreement and privacy policy.

Related to this story

Get up-to-the-minute news sent straight to your device.

Topics

News Alerts

Breaking News

Husker News